Blue Skies Volunteers (left to right): Emma, Pat, Briann, John, Vinnay, Lou, Pearl, Jeff |
Volunteer Vinnay Kakkera enjoys peppermint ice cream |
Welcome to the Blues Skies Hospice blog. Check back often for information and updates on Blue Skies, hospice care, and related issues. Blue Skies Hospice is a non-profit hospice care organization located in Hammond, Indiana and operating throughout the Northwest Indiana and Chicago suburban area. Out patient care is available throughout the region. For more information call (219) 554-0688, or email BlueSkiesHospice@netzero.com
Blue Skies Volunteers (left to right): Emma, Pat, Briann, John, Vinnay, Lou, Pearl, Jeff |
Volunteer Vinnay Kakkera enjoys peppermint ice cream |
Blue Skies Director Lisa Guzman and Volunteer Coordinator Pearl Masciotra in the parade. |
An older person, someone who will die within six months, leaves a hospital. Where does she go?
Almost a third of the time, according to a recent study from the University of California, San Francisco, records show she takes advantage of Medicare’s skilled-nursing facility benefit and enters a nursing home. But is that the best place for end-of-life care?
In terms of monitoring her vital signs and handling IVs — the round-the-clock nursing care that the skilled-nursing facility benefit is designed to provide — maybe so. But for treating end-of-life symptoms like pain and shortness of breath, for providing spiritual support for her and her family, for palliative care that helps her through the ultimate transition – hospice is the acknowledged expert.
She could receive hospice care, also covered by Medicare, while in the nursing home. But since Medicare only rarely reimburses for both hospice and the skilled-nursing facility benefit at the same time, this hypothetical patient and her family face a financial bind. If she opts for the hospice benefit, which does not include room and board at the nursing home, then she will be on the hook for hundreds of dollars a day to remain in the facility.
She could use the hospice benefit at home, of course. But, “we know these patients are medically complex,” said Katherine Aragon, lead author of the study in The Archives of Internal Medicine, and now a palliative care specialist at Lawrence General Hospital in Massachusetts.
“And we know that taking care of someone near the end of life can be very demanding, hard for families to manage at home.” And that assumes the patient has a family or a home.
For some patients, a nursing home, though possibly dreaded, is the only place that can provide 24/7 care.
But if she uses the skilled-nursing facility benefit to pay for room and board in a facility, she probably has to forgo hospice.Blue Skies Hospice provides palliative care and visitation to many residents of nursing homes. It enjoys a relationship with nursing homes and long term care facilities in Northwest Indiana, and is able to fill in the gaps of people's treatment - people who are seeking the stability, care, and benefits of health care facilities, but also need, as Span identifies, the palliative treatment, emotional support, and spiritually edifying companionship that hospice provides.
(From left to right) Arlene Bakota R.N., Volunteer Coordinator Pearl Masciotra, Volunteer Pat DeGan, Volunteer Julie Hancin, Chaplain Buddie Fennie, Director Lisa Guzman (seated) |
Resident enjoys her ice cream sundae. |
Residents having a good time |
(From left to right) Volunteer coordinator Pearl Masciotra, R.N. Karen Lansdowne, Volunteer Pat DeGan, John DeGan, Volunteer Julie Hancin |
Kindred Care residents and families enjoying the event |
Kindred Care resident Michelle |
Blue Skies Hospice staff and volunteers who hosted the event |
Volunteer Julie Hancin, Volunteer Pat DeGan, and Volunteer Coordinator Pearl Masciotra |
Chief among those myths is the notion that hospice consists of friendly visitors who sit in a darkened room and hold Grandma's hand while she dies, says Robin Stawasz, family services director at Southern Tier Hospice and Palliative Care in upstate New York.
"It's just not what we do. We come in and help people go golfing or go snowbird down to Florida, or go out to dinner several nights a week. We help them get to the casinos on weekends," she said. "This is not getting ready to die. This is living — living now, living tomorrow, making the best possible life with what you have."
According to the National Hospice and Palliative Care Organization, an estimated 1.58 million patients received hospice care from more than 5,000 programs nationwide in 2010, more than double the number of patients served a decade earlier. More than 40 percent of all deaths in the United States that year were under the care of hospice, which provides medical care, pain management, and emotional and spiritual support to patients with terminal illnesses.Continue reading here.
It's therapeutic and it lifts my spirits. Really, I felt like I was in another realm. I didn't feel like I was here. It was like I was lifted into another realm.
Hospice is to help maintain hope. It's to help guide. It's to help educate.
Residents enjoying the fair |
Blues Skies staff and volunteers organized and hosted the event |
Kindred Care staff also enjoyed the event |
Rabbi Tsurah August of the Jewish Hospice Network -- of which Wissahickon Hospice is a partner -- said that when she met with Ira at his home, she looked for his connections to Judaism. Ira played music, and August discovered a shofar in one of his instrument cases.
Since it was the month of Elul, which precedes the holiday of Rosh Hashanah, she told Ira about the hallowed tradition of blowing the shofar each day of that month.
She also talked about some of the shofar's symbolism.
One of them is that when a shofar sounds, it blasts through the boundaries between this world and the next; even though Ira had trouble breathing, he blew the shofar each day of Elul until he fell into a coma and died at the end of October.
August, who was ordained at the Academy for Jewish Religion, in New York City, said this activity was meaningful for Ira and gave him something to do when he no longer had the energy for his many interests.
This, she said, reflects the importance of hospice care in enhancing the quality of a patient's life.
Terre Mirsch, administrator of Holy Redeemer Hospice, said the value of music as a therapeutic tool has been getting more attention than in the past. Her program makes a point of including alternative treatments like massage and aromatherapy.There is no single forumla for hospice care. Blues Skies hospice tailors its care to the needs of the patient and her family. When music is helpful, it will use music. The example of the inspiration and comfor that Holy Redeemer hospice provides is one among many of the great meaning and value of hospice.
Music helps with "life review" - a favorite old song will almost certainly trigger a story - and it soothes people who are often anxious and uncomfortable. "It breaks the fight-or-flight response," Mirsch said.
Claire Fore, a former nun who works as a chaplain for Holy Redeemer, said she realized that music could change her own mood and has used it more and more with clients. She sings and plays an instrument called a QChord Digital SongCard Guitar. As soon as she starts to play, she said, "the facial expression changes. ... The body changes. ... I've had patients say to me they feel like they're in heaven."
"The findings in this report support what we see every day," Lew Little, chief executive officer of Harden Healthcare, said. "An increasing number of patients and their families are realizing the unique blend of clinical, social and spiritual support services that hospice care provides. Hospice services allow them to focus on spending quality time with friends and family rather than on care-giving details during this difficult time. Hospice is also there to support the family after the loss of a loved one."The statistical finds of the report reveal the nature of the growth of hospice care:
Hospice provides an invaluable service to terminal patients and their families. If you have questions about Blues Skies Hospice please call (219) 554-0688.
Almost 42 percent of all deaths in the United States took place under hospice care in 2010.
An estimated 1.58 million patients received hospice services in 2010.
The median time people spent in hospice care before dying was about 20 days.
Sixty-six percent of hospice patients died in their homes; 42 percent in a private residence other than their own homes; 21 percent in a "hospice house" and 18 percent in nursing homes.
Hospice patients died mostly of cancer (35.6 percent), followed by heart disease (14.3 percent).
The first hospice program in the United States opened in 1974, and currently, there are more than 5,000 programs nationwide.
The Medicare hospice benefit, enacted by Congress in 1982, is the major source of funding for hospice care.
Volunteer Coordinator Pearl Masciotra (left) and Julie Hancin (right) at the Banquet |
The role of hospice is to educate society about dying and a to make the three criteria outlined above a reality. When hospice workers are clear in their own minds what constitutes a good death, they can help their patients achieve it.
The next 30 years will be defined by the quality of care we provide for our elders. How will the baby boomers age and die? How are we as their kids going to care for them well and honor their memory and legacy? What kind of lives will we review?Blue Skies Hospice can help families in Northwest Indiana answer these questions. The dedicated staff of nurses, social workers, clergy, and volunteers understands, appreciates, and respects the sanctity of the situation from which these questions arise, and will assist families in determining what is best for them, and how they can achieve peace in moments of pain.
Hospice care is becoming a growing option for health care across the country. Some, however, still may not be aware of what hospice care is and what it provides for the recipient, as well as its availability in the local area.The committed and competent staff of Blue Skies is available at all times. Please contact Blue Skies if you have any questions about hospice treatment, and the services that Blue Skies offers.
Hospice care is considered to be the model of quality, compassionate care for those facing life-limiting illnesses, according to Legacy Hospice Inc. in Osceola, which provides residents living in Mississippi, Crittenden and Poinsett counties with hospice services. The goal of a hospice group is to work with the patient, either in their home or in a nursing home, to make their life as full and complete as it can possibly be during the last stages of an incurable illness, according to Kristin Owens, volunteer and bereavement coordinator for Legacy Hospice.
"These people aren't giving up. They just want to be able to live life to the fullest until the very end," Owens said.